Living Well With and Beyond Cancer

One of the strategic outcomes of new national cancer strategy is for the NHS to: “Transform our approach to support people living with and beyond cancer.”   “People require holistic support from diagnosis onwards, encompassing their physical, financial, psychosocial, and information and support needs, throughout their entire cancer journey.”

Our Support Group is engaging with primary and secondary medicine, charities and service providers to help ensure that this holistic support is available to prostate cancer, and, in effect, all cancer patients in our local area of mid-Sussex.

Drop-in Information and Support Centres, provided by Macmillan and partners where advice, information, support and complementary therapies are available, at:
The Olive Tree at Crawley Hospital with plans to open a second centre in Horsham.

East Surrey Hospital  at Redhill

The Queen Victoria Hospital East Grinstead

The Horizon Centre at the Royal Sussex Hospital, Brighton
Advice, support and complementary therapies are available at these centres.

There is also a Macmillan Room at the Princess Royal Hospital Haywards Heath.  During 2019 our Group hope to be supporting Macmillan in seeing whether it is possible to provide a similar range of advice and facilities as at the above hospitals.
Exercise: Research has shown that staying active is safe and beneficial in most cases of cancer. The benefits can include less fatigue, improved mood and survival, reduced disease progression and a decrease in risk of recurrence. Being active to recommended levels can also help reduce the risk of other health conditions such as coronary heart disease and diabetes type 2. For prostate cancer patients on hormone therapy there are specific NICE recommendations for twice-weekly supervised exercise sessions for the first twelve weeks of treatment.
Locally available exercise programmes:

a) The Dolphin Leisure Centre at Haywards Heath now has staff trained to run supervised exercise programmes for cancer patients and the first course started in mid-February 2019 and aims to:

- improve or restore range of movement

- assist with balance and coordination

- improve strength and mobility

- well being and physical fitness.

To take part in the programme please contact your GP, Physiotherapist or Nurse for a Referral form and forward it to either of the following:

The Dolphin
01444 457337

Mike Adcock   
mikeadcock@pfpleisure.org

Lorraine Elsden
lorraineelsden@pfpleisure.org
b) There are also new cancer rehab exercise groups at Hassocks Sports Centre, where Macmillan funded training for two instructors, contact: Kathy O'Regan: kathy.oregan@freedom-leisure.co.uk., and the Triangle at Burgess Hill contact: fionaclark@pfpleisure.org

c) Albion in the Community, the charitable arm of Brighton and Hove Albion Football Club, deliver a programme called Move More Sussex, together with Macmillan. The aim of the project is to ensure physical activity is available to people living with cancer across Sussex, and to support people to get more active through and beyond cancer. This can include support to access local cancer rehab classes, gym referrals, health walks, swimming whatever you enjoy,"let us help you find your thing!" For more information please contact: Rosie Sadler on: 01273 668591 or email: movemore@albioninthecommunity.org.uk.
Online Cancer Life Style Advice Video
Travel Advice
Travel and prostate cancer: updated fact sheet

Nutrition Advice
There is a nutritionist resource available to those who would like advice on healthy eating options with cancer. Click Here


Healthwatch West Sussex
If you need help and advice in respect of health and social care services, support with a complaint against an NHS funded service, or you wish to share your experience, you can find Healthwatch West Sussex at your local Citizens Advice Bureau (CAB). There are CAB centres in Bognor Regis, Burgess Hill, Chichester, Crawley, East Grinstead, Haywards Heath, Horsham, Lancing, Littlehampton, Shoreham-by-Sea and Worthing. Further details including opening times can be found Here

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